So, I haven't updated in a long time. But I have a really good excuse, I swear.
I quit working at Showers of Flowers in mid-October. One of my reasons for leaving was that I had been getting these horrible back pains at night. They had started the month before, and Dan and I tried everything to make them go away before I went to the clinic to see what the problem might be. The doctor there told me that they were probably stress-related (which seemed to make sense at the time, if you know anything about working at SoF), and she gave me tips on how to take care of them and some muscle relaxers. It all seemed to go away until mid-October, coincidentally when I was having a really hard time at work again. I left, without giving notice (because I gave a notice the first time that I quit, and I figured that was probably enough, really, I was just
so done).
I start working immediately at the candy store downtown again (Powell's Sweet Shoppe on Pearl Street), and everything's great for about a month. Then the back pains start again for no reason at all, this time accompanied by severe abdominal pain and vomiting. Fun. Another trip to the clinic, and the second doctor informs me that he's already called the ER to expect me because I have to have my gallbladder removed immediately.
The actual gallbladder removal wasn't so bad. My dad flew down to see us, and I was even walking around the same day. Everyone at the hospital seemed so excited that I was up and ready to go.
Now, here's where the real fun starts. The day after I get home, I show my dad around Boulder. We walk around the mall and drive around, lots of stuff. The entire time, I can see that I'm starting to get a weird rash on my legs and my stomach. It looks like little pin-pricks, and feels the same. During the course of the day, it gets worse. We call my surgeon, and she thinks that I might be allergic to the painkillers that I was prescribed, so I stop taking them.
The next day, nothing's better. In fact, everything's worse. I can barely walk around because of the regular surgery pain, plus now the rash is going everywhere and is all over my legs and ankles and feels like I'm being stabbed with needles repeatedly. I can't sleep at all that night because my ankles hurt so much and have gotten so covered in rash that they're basically just solidly red and swollen now. We head back to the ER at around 3 am, and they give me painkillers and stare at my ankles for several hours as they turn dark purple and blister heavily. I get admitted again, and we can tell that the doctors have absolutely no idea what's going on.
Over the next few days, not only does the rash not get better, but other seemingly-unrelated symptoms keep piling up. Suddenly, I have this intense pain and swelling in my joints, and I can barely move. Then I can't keep any food or liquids down at all. Then even more fascinating kidney and intestinal issues. The doctors have no idea.
At some point, I even had to have a tube put down my throat through my nose, which is, quite possibly, the most painful thing that I will ever have to experience. It feels good to have that moment of my life over now. I had countless IVs done, so many that they eventually had to put in a pick-line, which is like a more permanent IV that can also be used to draw blood for tests (which happened pretty much two or three times a day for two weeks).
After many, many doctors saw me and ridiculous amounts of blood were drawn and biopsies were taken, the doctors finally concluded that I have HSP (
Henoch-Schonlein Purpura). Basically, it's a fairly rare immune system reaction to either medication or infection which causes a severe rash, arthritis in the joints, and intestinal and kidney damage. Click on that link for more explicit information. Seriously, it's gross, yet fascinating. We still don't know if it was because of any mediciation or antibiotics that I took or if it was because of the gallbladder infection in the first place.
No matter what you do, HSP does not have a cure. Therefore, it has to run its full course, usually about 4-6 weeks. The doctors gave me steroids to help me get my strength back and help me be able to eat and drink and walk again, but even after that, I was still stuck in bed for a month. I watched a lot of TV on DVD and hung out a lot with Bowie in bed.

That's Bowie. He's our new kitty. He arrived the day that I quit SoF, and made the bed rest period of my life much more tolerable. (Why is he named Bowie? Because he has one gold eye and one blue eye. David Bowie has two different-colored eyes. And he was originally named Brian when we saw him in his shelter. Brian is a terrible name for a cat.)

It was hard. Seriously hard. I couldn't knit because of the arthritis in my wrists and hands. As I got better, I felt like I had to relearn how to walk, how to knit, how to drive...it was like my muscles forgot how to do a lot of this stuff.
I went back to work little by little, and now I'm back full-time. I'm finally back living my life again, which is great and weird, because I don't really feel yet like I'm the same person. However, all of this coinciding with the New Year feels right somehow. Like a new beginning.

Dan brought me this orchid in the hospital. During all the recovery and confusion, we almost let it die. However, after a few weeks of care, this new bloom appeared yesterday. Life's getting better, a little bit at a time.